Posted on March 23, 2020
by dangerdan
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My views living as an immunocompromised individual towards COVID-19. “And those who were seen dancing were thought to be insane by those who could not hear the music.” I try to live as much of a “normal life” as I can, however define “normal”….
Category: Another Perspective, Blog, COVID-19, Life Story, Our ChallengeTags: Asympomatic, Avian Influenza, Bacteria, Bacteria vs Viruses, CFRD, Contact tracing, Coronavirus, COVID-19, Cystic Fibrosis, Epidemic, Flattening the curve, Germs in the public, H1N1, H5N1, Hand sanitizer, Health care system, High Risk, Immunocompromised, Influenza A and B, Life Story, lung transplant, Mental Health, MERs, Pandemic, R-nought, R0, Risk from coronavirus, Ruminating, SARs, SARs CoV2, Self isolate, Soap, Symtopmatic, Viruses, Wash your hands
Posted on March 20, 2020
by dangerdan
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TRANSPLANT UPDATE (18 YEARS)!! “Enjoy the little things in life, for one day you’ll look back and realize they were the big things in your life.” In my mind I’ve been trying to navigate around the labyrinth that currently surrounds me. I am in…
Category: Another Perspective, Blog, Cystic Fibrosis, Life Story, TransplantTags: Another Perspective, Ceftazidime, Cystic Fibrosis, FEV1, Life Story, little things, lung transplant, Meropenem, Piperacillin, pneumonias, Pseudomonas, Transplant
Posted on March 22, 2019
by dangerdan
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“Life is like a wheel, sooner or later it comes around to where you started, reliving old challenges facing loss and once again rebuilding.” The heart of the question is simply this, “Are you strong enough to take the chance and spin…
Category: Another Perspective, Blog, Life Story, TransplantTags: (t-cells), Acute rejection, antigens, Aspergillus, B Cells, Bird Flu, bronchiolitis obilterans, bronchus tissue, cf, chronic lung allograft dysfunction, Chronic rejection, Cystic Fibrosis, Dan Pfaff, Danger Dan, failing lungs, fear, graft failure, H1N1, Life, life lessons, lung scarring, lung volume, O2 saturations, Organ Awareness, Organ donor, pneumonia, Pseudomonas, quality of life, retransplant, second transplant, third lung transplant, Tom Hall, Toronto General Hospital, Transplantation, UHN, World's first successful lung transplant, World's first successful single lung transplant
Posted on May 31, 2018
by dangerdan
3 Comments
“Everything will be alright in the end. If it’s not alright it’s not the end.” The end of May approaches warmer weather greets us which means more outdoor activities. Let me set the day for you. After a cold long winter, there are…
Category: Another Perspective, Blog, Cystic Fibrosis, Life Story, Mental HealthTags: anxiety, cf, CFRD, Cystic Fibrosis, depression, Life Story, Mental Health
Posted on March 22, 2018
by dangerdan
2 Comments
Do not spoil what you have by desiring what you have not; But remember that what you now have was once among the things you only hoped for. Yesterday, (March 21st, 2010) and today, (March 22nd, 2002) are extremely important days in my…
Posted on May 22, 2017
by dangerdan
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Perspective is the way we see things when we look at facts from a certain distance, it allows us to appreciate their true values. These values can lead us to different illusions, giving us the ability to remove the blindfold that can overcome our…
Category: Another Perspective, Blog, Cystic FibrosisTags: Another Perspective, anxiety, cf, Cystic Fibrosis Awareness Month, depression, Life Story, Perspective, perspective of another life, reality, Transplantation
Posted on May 16, 2017
by dangerdan
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You didn’t cause it. You can’t cure it. You can’t avoid it. You can’t ignore it. You can’t control it. You try to manage it while concealing it from the “normal world”. Cystic Fibrosis (CF) is often called the invisible disease. Invisible illnesses are…
Category: Another Perspective, Blog, Cystic Fibrosis, Life Story, UncategorizedTags: alzheimers, anxiety, Awareness, cancer, cf, chronic pain, chrons, ciliated epithelial cells, Cystic Fibrosis Awareness Month, depression, diabetes, disabilities, disability, Education, epilepsy, fibromyalgia, gastrointestinal tract, Health, invisible disease, invisible illness, Life, Life Story, lung transplant, malabsorption, maldigestion, nutrition, pancreatic enzyme, pancreatic insufficiency, perspective of another, PERT
Posted on May 8, 2017
by dangerdan
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INHALE, EXHALE, now again INHALE, EXHALE, and REPEAT, it’s easier said than done for some. Breathing is an involuntary act which most people do not think about and take for granted. To someone with Cystic Fibrosis that breath you just took would be a gift! Many people have…
Category: Another Perspective, Blog, Cystic Fibrosis, Life StoryTags: anxiety, Bones, breathe, cf, coughing, Cystic Fibrosis Awareness Month, Cystic Fibrosis Foundation, debilitating fatigue, depression, diabetes, digestive enzymes, digestive system, drugs, Education, exocrine glands, fight2breathe, Health, infections, intestines, life-threatening, liver, loneliness, lungs, mucus, Mutations, nutrition, pancreas, respiratory, shortness of breath, straw challenge, sweat
Posted on April 19, 2017
by dangerdan
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Have you ever wanted to be a Hero, what is a Hero these days anyway? I am sure if you ask around you’ll get some interesting answers. As the world has evolved the definition of a hero has changed. The dictionary defines a hero…
Category: Another Perspective, Blog, Gift Of Life, Life Story, Organ Donation, Pass.it.on, Think Green, UncategorizedTags: achilles, Alberta, Awareness, blood donation, bone transplant, British Columbia, burn victims, Canada, cerebral brain hemorrhage, CFRD, Chronic rejection, cornea transplant, diabetes, Donation, Education, enzymes, family, florence nightingale, fun fact, Fundraising, gilgamesh, gloria steinem, Health, heart transplants, hero, idiopathic pulmonary disease, illnesses, insulin, iphigenia, islet cell transplantation, joan of arc, Kidney, kidney transplant, Life, life saving, liver, liver transplants, lungs, mahatma gangi, Manitoba, martin luther king jr, Ministry of Health and Long-Term Care, National Organ and Tissue Donation Awareness Month, necrotizing fasciitis, New Brunswick, Newfoundland and Labrador, Northwest Territories, NOTDAM, Nova Scotia, Nunavut, obstructive pulmonary disease, Ontario, Organ Awareness, pancreas transplant, Prince Edward Island, purpura fulminans, Quebec, recycle, rejection, Saskatchewan, skin cancer, skin grafts, Sweden, Think Green, tissue donation, Transplantation
Posted on March 22, 2017
by dangerdan
4 Comments
For the past few weeks, I’ve been looking for some guidance some extra light to inspire me, due to the fact I no longer know what I want or know where I want to be. I know there are still things in life I…
