Posted on November 15, 2020
by dangerdan
3 Comments
November 14th marked Dan’s 100th day in the hospital. Typically, 100 days is a celebration. It is an achievement of great proportions. It demonstrates perseverance, commitment, and the passing of time. For Dan, it demonstrates his resilience, his determination to live, and a transformation.… Continue Reading “THE 100 DAY ODYSSEY”
Posted on September 10, 2020
by apfaffer
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Gallbladders make bad Salad Dressing The sequences of events that have landed Dan in the ICU really have no beginning. One could argue that the day Dan came screaming into this world would have been the starting point. However, this particular spark that ignited… Continue Reading “Day 1 – 6: Gallbladders make bad Salad Dressing”
Category: Another Perspective, Awareness, Blog, Cystic Fibrosis, Gift Of Life, Life Story, Time line, Time LineTags: Aspergillus, Blog, Cystic Fibrosis, Life Story, perspective of another life, Pseudomonas, Transplant
Posted on September 8, 2020
by apfaffer
3 Comments
37 Days That is how long Dan has been in the hospital. In that time, his normal has changed dramatically. 40 days ago, he waved farewell to me as I pointed my car back to Calgary. We had spent the month of July enjoying… Continue Reading “A timeline”
Category: Another Perspective, Awareness, Blog, Cystic Fibrosis, Life Story, Pass.it.on, Time Line, TransplantTags: Another Perspective, Blog, Cystic Fibrosis, Life Story, Relationships with Cystic Fibrosis, third lung transplant, Transplant, update
Posted on March 20, 2020
by dangerdan
4 Comments
TRANSPLANT UPDATE (18 YEARS)!! “Enjoy the little things in life, for one day you’ll look back and realize they were the big things in your life.” In my mind I’ve been trying to navigate around the labyrinth that currently surrounds me. I am in… Continue Reading “The Little Things In Life”
Category: Another Perspective, Blog, Cystic Fibrosis, Life Story, TransplantTags: Another Perspective, Blog, Ceftazidime, Cystic Fibrosis, FEV1, Life Story, little things, lung transplant, Meropenem, Piperacillin, pneumonias, Pseudomonas, Transplant
Posted on May 23, 2017
by dangerdan
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Eric’s Perspective: Most chronic, invisible diseases are like an iceberg. Even once you think you’ve got a complete picture of the shape of the monster, you haven’t seen the largest, scariest part. CF isn’t something that just flares up sometimes and lets you live… Continue Reading “Life’s Fragility”
Category: Another Perspective, Cystic Fibrosis, Gift Of Life, Organ DonationTags: cf, Cystic Fibrosis, Cystic Fibrosis Awareness Month, Cystic Fibrosis Life, Health, hemoptysis, infections, Infectious disease, perspective of another life, Perspective of Cystic Fibrosis, Relationships with Cystic Fibrosis, storys, Transplant
Posted on May 23, 2017
by dangerdan
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Ashley’s Perspective: Living with a chronic illness is never easy, especially Cystic Fibrosis. I was born in Denver, Colorado and diagnosed with Cystic Fibrosis at birth. Colorado was the first state in the nation to include Cystic Fibrosis in newborn screening. From a young… Continue Reading “But We Are Warriors”
Category: Another Perspective, Cystic Fibrosis, Gift Of Life, Organ DonationTags: Ashley's Roses, cf, CFRD, chronic illness, Colorado, Cystic Fibrosis, Cystic Fibrosis Liver Disease, Cystic Fibrosis Related Diabetes, Cystic Fibrosis Warriors, Denver, digestive system, Liver Disease, liver transplants, perspective of another life, Perspective of Cystic Fibrosis, TIPS Procedure, Transplant
Posted on March 22, 2017
by dangerdan
4 Comments
For the past few weeks, I’ve been looking for some guidance some extra light to inspire me, due to the fact I no longer know what I want or know where I want to be. I know there are still things in life I… Continue Reading “Contemplation”
Category: Another Perspective, Blog, Gift Of Life, Life Story, Organ Donation, UncategorizedTags: Anniversary, Another Perspective, Blog, Life, Life Story, Transplant
Posted on March 22, 2016
by dangerdan
3 Comments
Today is a special day, as well as yesterday even the day after tomorrow will be and so on for myself and others. March 21st marks 6 years since my second double lung transplant, followed by March 22nd making it 14 years from my… Continue Reading “Life is A Card Game”
Category: Another Perspective, Blog, Gift Of Life, Organ Donation, UncategorizedTags: Anniversary, Another Perspective, Antibodies, Blog, Bone Scan, Bones, bronchoscopy, Cystic Fibrosis, ivig, Life, Life Story, lung transplant, Organ, oxygen, PFT’s, Plasmapheresis, Pseudomonas, Pulse Steroids, Rheumatology, St Michaels Hospital, TGH, third lung transplant, Toronto General Hospital, Transplant, vitamin a
Posted on March 22, 2015
by dangerdan
1 Comment
I am luckier than most people, even the ones who have won the lottery! How many people can say they have received two double lung transplants? My first transplant (March, 22nd 2002) and 8 years and a day earlier (March, 21st, 2010) I received… Continue Reading “Live Fearlessly”
Category: Another Perspective, Life Story, Transplant, UncategorizedTags: Anniversary, Blog, Cystic Fibrosis, fearlessly, Life, lung transplant, Transplant, update
Posted on February 5, 2015
by dangerdan
11 Comments
It has been almost 5 years since my second double lung transplant (March 2010) and 13 years since my first (March 2002). It is truly amazing how fast the time has flown by. I’m here because someone gave me the gift of life.… Continue Reading “In For An Oil Change”
Category: Another Perspective, Blog, Gift Of Life, Life Story, Organ Donation, Pass.it.onTags: (t-cells), Acute rejection, albumin, Another Perspective, Antibodies, antibodies count, anticoagulant, autoimmune disorders, Blog, blood pressure dropped, bronchiolitis obilterans, bronchoscopy, C.F. treatments, calcium, central line, central venous catheter, cf, Chronic rejection, CNS, collect sap, CT scan, Drug toxicity, drugs, family, friends, Gift Of Life, HCT, Health, hormones, Hyperacute rejection, imunnesupressed, Influenza, ions, Lymphocytes, maple syrup, OR Room, plasma, Plasmapheresis, PLTS, prednisone, proteins, Pulmonary function tests, pulse therapy, re-evaluated for a second lung transplant, saline solution, social media, stroke, taco neck, Tamiflu, Transplant, Transplantation, Ultrasound Machine, update, veins, vitamins, washing, WBC, Xray