Tag: Transplant

THE 100 DAY ODYSSEY

November 14th marked Dan’s 100th day in the hospital. Typically, 100 days is a celebration. It is an achievement of great proportions. It demonstrates perseverance, commitment, and the passing of time. For Dan, it demonstrates his resilience, his determination to live, and a transformation.… Continue Reading “THE 100 DAY ODYSSEY”

Day 1 – 6: Gallbladders make bad Salad Dressing

Gallbladders make bad Salad Dressing The sequences of events that have landed Dan in the ICU really have no beginning. One could argue that the day Dan came screaming into this world would have been the starting point. However, this particular spark that ignited… Continue Reading “Day 1 – 6: Gallbladders make bad Salad Dressing”

A timeline

37 Days That is how long Dan has been in the hospital. In that time, his normal has changed dramatically. 40 days ago, he waved farewell to me as I pointed my car back to Calgary. We had spent the month of July enjoying… Continue Reading “A timeline”

The Little Things In Life

TRANSPLANT UPDATE (18 YEARS)!! “Enjoy the little things in life, for one day you’ll look back and realize they were the big things in your life.” In my mind I’ve been trying to navigate around the labyrinth that currently surrounds me. I am in… Continue Reading “The Little Things In Life”

Life’s Fragility

 Eric’s Perspective: Most chronic, invisible diseases are like an iceberg. Even once you think you’ve got a complete picture of the shape of the monster, you haven’t seen the largest, scariest part. CF isn’t something that just flares up sometimes and lets you live… Continue Reading “Life’s Fragility”

But We Are Warriors

Ashley’s Perspective: Living with a chronic illness is never easy, especially Cystic Fibrosis.  I was born in Denver, Colorado and diagnosed with Cystic Fibrosis at birth.  Colorado was the first state in the nation to include Cystic Fibrosis in newborn screening.  From a young… Continue Reading “But We Are Warriors”

Contemplation

For the past few weeks, I’ve been looking for some guidance some extra light to inspire me, due to the fact I no longer know what I want or know where I want to be. I know there are still things in life I… Continue Reading “Contemplation”

Life is A Card Game

Today is a special day, as well as yesterday even the day after tomorrow will be and so on for myself and others. March 21st marks 6 years since my second double lung transplant, followed by March 22nd making it 14 years from my… Continue Reading “Life is A Card Game”

Live Fearlessly

I am luckier than most people, even the ones who have won the lottery! How many people can say they have received two double lung transplants? My first transplant (March, 22nd 2002) and 8 years and a day earlier (March, 21st, 2010) I received… Continue Reading “Live Fearlessly”

In For An Oil Change

In For An Oil Change

  It has been almost 5 years since my second double lung transplant (March 2010) and 13 years since my first (March 2002). It is truly amazing how fast the time has flown by. I’m here because someone gave me the gift of life.… Continue Reading “In For An Oil Change”