November 14th marked Dan’s 100th day in the hospital. Typically, 100 days is a celebration. It is an achievement of great proportions. It demonstrates perseverance, commitment, and the passing of time. For Dan, it demonstrates his resilience, his determination to live, and a transformation. Over the past 100 days many changes have occurred. At times … Continue reading THE 100 DAY ODYSSEY
Author: dangerdan
Immunocompromised Vs COVID-19
My views living as an immunocompromised individual towards COVID-19. “And those who were seen dancing were thought to be insane by those who could not hear the music.” I try to live as much of a “normal life” as I can, however define “normal”. Normal is an illusion we as a society have created to … Continue reading Immunocompromised Vs COVID-19
The Little Things In Life
TRANSPLANT UPDATE (18 YEARS)!! “Enjoy the little things in life, for one day you’ll look back and realize they were the big things in your life.” In my mind I’ve been trying to navigate around the labyrinth that currently surrounds me. I am in need of a transplant yet I am hiding from the world … Continue reading The Little Things In Life
A WARRIOR CAN STILL BE MADE OUT OF ME
“Life is like a wheel, sooner or later it comes around to where you started, reliving old challenges facing loss and once again rebuilding.” The heart of the question is simply this, “Are you strong enough to take the chance and spin the wheel one more time”? I've always wanted to be that … Continue reading A WARRIOR CAN STILL BE MADE OUT OF ME
Mental health
"Everything will be alright in the end. If it's not alright it's not the end." The end of May approaches warmer weather greets us which means more outdoor activities. Let me set the day for you. After a cold long winter, there are many people taking advantage of these summer-like days in May by … Continue reading Mental health
A Gift of Eight Letters
Do not spoil what you have by desiring what you have not; But remember that what you now have was once among the things you only hoped for. Yesterday, (March 21st, 2010) and today, (March 22nd, 2002) are extremely important days in my life. In fact, they are more important than my birthday; I … Continue reading A Gift of Eight Letters
A Family Who Embraces Each Other
Julie's Perspective: I’m a 35-year-old runner, gardener, yogi, teacher, wife, and mom. I love reading young adult novels, exploring farmer’s markets, adventuring with my family and experimenting with new recipes. I don’t have cystic fibrosis. In fact, for more than half my life, I didn’t even know CF existed. I had no idea the impact … Continue reading A Family Who Embraces Each Other
CFers Are An Incredible Bunch
Marissa’s Perspective: CFers are an incredible bunch, and Eric is no exception. Having a close view of his courage, strength, and determination has changed me for the better…and the not-so-easy times we’ve encountered have helped me grow as a person. I’ve become more thankful for the many positive things in my life, more content to … Continue reading CFers Are An Incredible Bunch
The Gifts Of A Fight With CF
Chad's Perspective: Starting this blog post was a hard thing for me as putting this down on paper is not easy for me. When Dan asked if I would be willing to share something about CF to help promote Cystic Fibrosis awareness month I was all in but actually writing it was a whole different … Continue reading The Gifts Of A Fight With CF
Life’s Fragility
Eric's Perspective: Most chronic, invisible diseases are like an iceberg. Even once you think you’ve got a complete picture of the shape of the monster, you haven’t seen the largest, scariest part. CF isn’t something that just flares up sometimes and lets you live your life the rest of the time; it’s also not something … Continue reading Life’s Fragility