Category: Cystic Fibrosis

Mental health

  “Everything will be alright in the end. If it’s not alright it’s not the end.” The end of May approaches warmer weather greets us which means more outdoor activities. Let me set the day for you. After a cold long winter, there are…

A Family Who Embraces Each Other

Julie’s Perspective: I’m a 35-year-old runner, gardener, yogi, teacher, wife, and mom.  I love reading young adult novels, exploring farmer’s markets, adventuring with my family and experimenting with new recipes.  I don’t have cystic fibrosis.  In fact, for more than half my life, I…

CFers Are An Incredible Bunch

Marissa’s Perspective: CFers are an incredible bunch, and Eric is no exception. Having a close view of his courage, strength, and determination has changed me for the better…and the not-so-easy times we’ve encountered have helped me grow as a person. I’ve become more thankful…

The Gifts Of A Fight With CF

Chad’s Perspective:  Starting this blog post was a hard thing for me as putting this down on paper is not easy for me. When Dan asked if I would be willing to share something about CF to help promote Cystic Fibrosis awareness month I…

Life’s Fragility

 Eric’s Perspective: Most chronic, invisible diseases are like an iceberg. Even once you think you’ve got a complete picture of the shape of the monster, you haven’t seen the largest, scariest part. CF isn’t something that just flares up sometimes and lets you live…

But We Are Warriors

Ashley’s Perspective: Living with a chronic illness is never easy, especially Cystic Fibrosis.  I was born in Denver, Colorado and diagnosed with Cystic Fibrosis at birth.  Colorado was the first state in the nation to include Cystic Fibrosis in newborn screening.  From a young…

A Point of View

Perspective is the way we see things when we look at facts from a certain distance, it allows us to appreciate their true values.  These values can lead us to different illusions, giving us the ability to remove the blindfold that can overcome our…

CAN YOU SEE ME NOW

You didn’t cause it. You can’t cure it. You can’t avoid it. You can’t ignore it. You can’t control it. You try to manage it while concealing it from the “normal world”. Cystic Fibrosis (CF) is often called the invisible disease. Invisible illnesses are…

BREATHE

INHALE, EXHALE, now again INHALE, EXHALE, and REPEAT, it’s easier said than done for some. Breathing is an involuntary act which most people do not think about and take for granted. To someone with Cystic Fibrosis that breath you just took would be a gift! Many people have…

My Journey Through My Transplants

March 22nd, two days after the arrival of Spring is a very important anniversary for me. It is the day that not once but twice I was given a second chance at life; my new beginnings! How incredible to think that my two Double…

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