Tag: lung transplant

Immunocompromised Vs COVID-19

My views living as an immunocompromised individual towards COVID-19. “And those who were seen dancing were thought to be insane by those who could not hear the music.” I try to live as much of a “normal life” as I can, however define “normal”….

The Little Things In Life

TRANSPLANT UPDATE (18 YEARS)!! “Enjoy the little things in life, for one day you’ll look back and realize they were the big things in your life.” In my mind I’ve been trying to navigate around the labyrinth that currently surrounds me. I am in…

CFers Are An Incredible Bunch

Marissa’s Perspective: CFers are an incredible bunch, and Eric is no exception. Having a close view of his courage, strength, and determination has changed me for the better…and the not-so-easy times we’ve encountered have helped me grow as a person. I’ve become more thankful…

CAN YOU SEE ME NOW

You didn’t cause it. You can’t cure it. You can’t avoid it. You can’t ignore it. You can’t control it. You try to manage it while concealing it from the “normal world”. Cystic Fibrosis (CF) is often called the invisible disease. Invisible illnesses are…

Life is A Card Game

Today is a special day, as well as yesterday even the day after tomorrow will be and so on for myself and others. March 21st marks 6 years since my second double lung transplant, followed by March 22nd making it 14 years from my…

Live Fearlessly

I am luckier than most people, even the ones who have won the lottery! How many people can say they have received two double lung transplants? My first transplant (March, 22nd 2002) and 8 years and a day earlier (March, 21st, 2010) I received…