Tag: Life Story

Immunocompromised Vs COVID-19

My views living as an immunocompromised individual towards COVID-19. “And those who were seen dancing were thought to be insane by those who could not hear the music.” I try to live as much of a “normal life” as I can, however define “normal”….

The Little Things In Life

TRANSPLANT UPDATE (18 YEARS)!! “Enjoy the little things in life, for one day you’ll look back and realize they were the big things in your life.” In my mind I’ve been trying to navigate around the labyrinth that currently surrounds me. I am in…

Mental health

  “Everything will be alright in the end. If it’s not alright it’s not the end.” The end of May approaches warmer weather greets us which means more outdoor activities. Let me set the day for you. After a cold long winter, there are…

A Point of View

Perspective is the way we see things when we look at facts from a certain distance, it allows us to appreciate their true values.  These values can lead us to different illusions, giving us the ability to remove the blindfold that can overcome our…

CAN YOU SEE ME NOW

You didn’t cause it. You can’t cure it. You can’t avoid it. You can’t ignore it. You can’t control it. You try to manage it while concealing it from the “normal world”. Cystic Fibrosis (CF) is often called the invisible disease. Invisible illnesses are…

15 Years!

My life has been based on numbers, predictions, percentages, baselines, decisions made by a team of doctors. I am not saying that I have not been a part of any of these decisions, in fact, I am the final call on all the end…

Contemplation

For the past few weeks, I’ve been looking for some guidance some extra light to inspire me, due to the fact I no longer know what I want or know where I want to be. I know there are still things in life I…

Life is A Card Game

Today is a special day, as well as yesterday even the day after tomorrow will be and so on for myself and others. March 21st marks 6 years since my second double lung transplant, followed by March 22nd making it 14 years from my…

My Journey Through My Transplants

March 22nd, two days after the arrival of Spring is a very important anniversary for me. It is the day that not once but twice I was given a second chance at life; my new beginnings! How incredible to think that my two Double…