Tag: Genetic disorder

Are You Aware?

Originally posted on CF Wife:
Do you remember the first time you learned about Cystic Fibrosis?  It has been my experience that unless you work in healthcare or have a personal connection to the disease (most likely through a friend, family member, or acquaintance),…

Time is Precious….

May is Cystic Fibrosis Awareness Month Time is Precious for Those Living with Cystic Fibrosis

Results from Spinning for Dan

I have asked Elise to give the results from Spinning for Dan ending on April 27. For those of you who do not know the Month of May is Cystic Fibrosis awareness month. Let’s continue the peddling motion of  Spinning for Dan and move…

Clean Bill of Heath

Yesterday (March, 25th, 2013) was my yearly transplant assessment, it’s a day filled with appointments and test to determine how well my lungs are progressing.  Being my third year since my transplant there are fewer tests, so the day isn’t as filled as it…

Spinning for Dan

Spinning for Dan is an event hosted by two good friends that I have come across through my journey Devin Featherstone and Elise Miles. The reason for this event is to raise awareness towards Cystic Fibrosis and raise donations to help end Cystic Fibrosis….