Tag: Cystic Fibrosis

Mental health

  “Everything will be alright in the end. If it’s not alright it’s not the end.” The end of May approaches warmer weather greets us which means more outdoor activities. Let me set the day for you. After a cold long winter, there are…

A Family Who Embraces Each Other

Julie’s Perspective: I’m a 35-year-old runner, gardener, yogi, teacher, wife, and mom.  I love reading young adult novels, exploring farmer’s markets, adventuring with my family and experimenting with new recipes.  I don’t have cystic fibrosis.  In fact, for more than half my life, I…

CFers Are An Incredible Bunch

Marissa’s Perspective: CFers are an incredible bunch, and Eric is no exception. Having a close view of his courage, strength, and determination has changed me for the better…and the not-so-easy times we’ve encountered have helped me grow as a person. I’ve become more thankful…

Life’s Fragility

 Eric’s Perspective: Most chronic, invisible diseases are like an iceberg. Even once you think you’ve got a complete picture of the shape of the monster, you haven’t seen the largest, scariest part. CF isn’t something that just flares up sometimes and lets you live…

But We Are Warriors

Ashley’s Perspective: Living with a chronic illness is never easy, especially Cystic Fibrosis.  I was born in Denver, Colorado and diagnosed with Cystic Fibrosis at birth.  Colorado was the first state in the nation to include Cystic Fibrosis in newborn screening.  From a young…

Life is A Card Game

Today is a special day, as well as yesterday even the day after tomorrow will be and so on for myself and others. March 21st marks 6 years since my second double lung transplant, followed by March 22nd making it 14 years from my…

Live Fearlessly

I am luckier than most people, even the ones who have won the lottery!   How many people can say they have received two double lung transplants?   My first transplant (March, 22nd 2002) and 8 years and a day earlier (March, 21st, 2010) I received my second transplant. What are the…

Are You Aware?

Originally posted on CF Wife:
Do you remember the first time you learned about Cystic Fibrosis?  It has been my experience that unless you work in healthcare or have a personal connection to the disease (most likely through a friend, family member, or acquaintance),…

Results from Spinning for Dan

I have asked Elise to give the results from Spinning for Dan ending on April 27. For those of you who do not know the Month of May is Cystic Fibrosis awareness month. Let’s continue the peddling motion of  Spinning for Dan and move…

Clean Bill of Heath

  Yesterday (March, 25th, 2013) was my yearly transplant assessment, it’s a day filled with appointments and test to determine how well my lungs are progressing.  Being my third year since my transplant there are fewer tests, so the day isn’t as filled as…

Spinning for Dan

Spinning for Dan is an event hosted by two good friends that I have come across through my journey Devin Featherstone and Elise Miles. The reason for this event is to raise awareness towards Cystic Fibrosis and raise donations to help end Cystic Fibrosis….

Spinning for Dan

On April 27th Devin Featherstone will be doing his part of raising awareness for Cystic Fibrosis, he has invited everyone to come and support him. The event maybe taking place in Calgary but you can still  take part by donating and by spreading the…

%d bloggers like this:
%d bloggers like this:
%d bloggers like this:
%d bloggers like this:
%d bloggers like this:
%d bloggers like this:
%d bloggers like this:
%d bloggers like this:
%d bloggers like this:
%d bloggers like this:
%d bloggers like this:
%d bloggers like this: