Tag: Cystic Fibrosis
Posted on November 15, 2020
by dangerdan
3 Comments
November 14th marked Dan’s 100th day in the hospital. Typically, 100 days is a celebration. It is an achievement of great proportions. It demonstrates perseverance, commitment, and the passing of time. For Dan, it demonstrates his resilience, his determination to live, and a transformation.… Continue Reading “THE 100 DAY ODYSSEY”
Posted on September 10, 2020
by apfaffer
3 Comments
Gallbladders make bad Salad Dressing The sequences of events that have landed Dan in the ICU really have no beginning. One could argue that the day Dan came screaming into this world would have been the starting point. However, this particular spark that ignited… Continue Reading “Day 1 – 6: Gallbladders make bad Salad Dressing”
Category: Another Perspective, Awareness, Blog, Cystic Fibrosis, Gift Of Life, Life Story, Time line, Time LineTags: Aspergillus, Blog, Cystic Fibrosis, Life Story, perspective of another life, Pseudomonas, Transplant
Posted on September 8, 2020
by apfaffer
3 Comments
37 Days That is how long Dan has been in the hospital. In that time, his normal has changed dramatically. 40 days ago, he waved farewell to me as I pointed my car back to Calgary. We had spent the month of July enjoying… Continue Reading “A timeline”
Category: Another Perspective, Awareness, Blog, Cystic Fibrosis, Life Story, Pass.it.on, Time Line, TransplantTags: Another Perspective, Blog, Cystic Fibrosis, Life Story, Relationships with Cystic Fibrosis, third lung transplant, Transplant, update
Posted on March 23, 2020
by dangerdan
1 Comment
My views living as an immunocompromised individual towards COVID-19. “And those who were seen dancing were thought to be insane by those who could not hear the music.” I try to live as much of a “normal life” as I can, however define “normal”.… Continue Reading “Immunocompromised Vs COVID-19”
Category: Another Perspective, Blog, COVID-19, Life Story, Our ChallengeTags: Asympomatic, Avian Influenza, Bacteria, Bacteria vs Viruses, Blog, CFRD, Contact tracing, Coronavirus, COVID-19, Cystic Fibrosis, Epidemic, Flattening the curve, Germs in the public, H1N1, H5N1, Hand sanitizer, Health care system, High Risk, Immunocompromised, Influenza A and B, Life Story, lung transplant, Mental Health, MERs, Pandemic, R-nought, R0, Risk from coronavirus, Ruminating, SARs, SARs CoV2, Self isolate, Soap, Symtopmatic, Viruses, Wash your hands
Posted on March 20, 2020
by dangerdan
4 Comments
TRANSPLANT UPDATE (18 YEARS)!! “Enjoy the little things in life, for one day you’ll look back and realize they were the big things in your life.” In my mind I’ve been trying to navigate around the labyrinth that currently surrounds me. I am in… Continue Reading “The Little Things In Life”
Category: Another Perspective, Blog, Cystic Fibrosis, Life Story, TransplantTags: Another Perspective, Blog, Ceftazidime, Cystic Fibrosis, FEV1, Life Story, little things, lung transplant, Meropenem, Piperacillin, pneumonias, Pseudomonas, Transplant
Posted on March 22, 2019
by dangerdan
1 Comment
“Life is like a wheel, sooner or later it comes around to where you started, reliving old challenges facing loss and once again rebuilding.” The heart of the question is simply this, “Are you strong enough to take the chance and spin… Continue Reading “A WARRIOR CAN STILL BE MADE OUT OF ME”
Category: Another Perspective, Blog, Life Story, TransplantTags: (t-cells), Acute rejection, antigens, Aspergillus, B Cells, Bird Flu, Blog, bronchiolitis obilterans, bronchus tissue, cf, chronic lung allograft dysfunction, Chronic rejection, Cystic Fibrosis, Dan Pfaff, Danger Dan, failing lungs, fear, graft failure, H1N1, Life, life lessons, lung scarring, lung volume, O2 saturations, Organ Awareness, Organ donor, pneumonia, Pseudomonas, quality of life, retransplant, second transplant, third lung transplant, Tom Hall, Toronto General Hospital, Transplantation, UHN, World's first successful lung transplant, World's first successful single lung transplant
Posted on May 31, 2018
by dangerdan
3 Comments
“Everything will be alright in the end. If it’s not alright it’s not the end.” The end of May approaches warmer weather greets us which means more outdoor activities. Let me set the day for you. After a cold long winter, there are… Continue Reading “Mental health”
Category: Another Perspective, Blog, Cystic Fibrosis, Life Story, Mental HealthTags: anxiety, cf, CFRD, Cystic Fibrosis, depression, Life Story, Mental Health
Posted on May 31, 2017
by dangerdan
3 Comments
Julie’s Perspective: I’m a 35-year-old runner, gardener, yogi, teacher, wife, and mom. I love reading young adult novels, exploring farmer’s markets, adventuring with my family and experimenting with new recipes. I don’t have cystic fibrosis. In fact, for more than half my life, I… Continue Reading “A Family Who Embraces Each Other”
Category: Another Perspective, Cystic FibrosisTags: anxiety, CF Support, CF Wife, compassion, Cystic Fibrosis, Cystic Fibrosis and Families, Cystic Fibrosis Awareness Month, Cystic Fibrosis Life, depression, Embrace Cystic Fibrosis, empath, perspective of another life, Perspective of Cystic Fibrosis, Relationships with Cystic Fibrosis, storys
Posted on May 30, 2017
by dangerdan
2 Comments
Marissa’s Perspective: CFers are an incredible bunch, and Eric is no exception. Having a close view of his courage, strength, and determination has changed me for the better…and the not-so-easy times we’ve encountered have helped me grow as a person. I’ve become more thankful… Continue Reading “CFers Are An Incredible Bunch”
Category: Another Perspective, Cystic Fibrosis, Gift Of Life, Organ DonationTags: caregiver, courage, Cystic Fibrosis, Cystic Fibrosis Awareness Month, Cystic Fibrosis Life, determination, hemoptysis, lung transplant, lungs, perspective of another life, Perspective of Cystic Fibrosis, Relationships with Cystic Fibrosis, storys, strength
Posted on May 23, 2017
by dangerdan
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Eric’s Perspective: Most chronic, invisible diseases are like an iceberg. Even once you think you’ve got a complete picture of the shape of the monster, you haven’t seen the largest, scariest part. CF isn’t something that just flares up sometimes and lets you live… Continue Reading “Life’s Fragility”
Category: Another Perspective, Cystic Fibrosis, Gift Of Life, Organ DonationTags: cf, Cystic Fibrosis, Cystic Fibrosis Awareness Month, Cystic Fibrosis Life, Health, hemoptysis, infections, Infectious disease, perspective of another life, Perspective of Cystic Fibrosis, Relationships with Cystic Fibrosis, storys, Transplant