Tag: Cystic Fibrosis


November 14th marked Dan’s 100th day in the hospital. Typically, 100 days is a celebration. It is an achievement of great proportions. It demonstrates perseverance, commitment, and the passing of time. For Dan, it demonstrates his resilience, his determination to live, and a transformation.… Continue Reading “THE 100 DAY ODYSSEY”

Day 1 – 6: Gallbladders make bad Salad Dressing

Gallbladders make bad Salad Dressing The sequences of events that have landed Dan in the ICU really have no beginning. One could argue that the day Dan came screaming into this world would have been the starting point. However, this particular spark that ignited… Continue Reading “Day 1 – 6: Gallbladders make bad Salad Dressing”

A timeline

37 Days That is how long Dan has been in the hospital. In that time, his normal has changed dramatically. 40 days ago, he waved farewell to me as I pointed my car back to Calgary. We had spent the month of July enjoying… Continue Reading “A timeline”

Immunocompromised Vs COVID-19

My views living as an immunocompromised individual towards COVID-19. “And those who were seen dancing were thought to be insane by those who could not hear the music.” I try to live as much of a “normal life” as I can, however define “normal”.… Continue Reading “Immunocompromised Vs COVID-19”

The Little Things In Life

TRANSPLANT UPDATE (18 YEARS)!! “Enjoy the little things in life, for one day you’ll look back and realize they were the big things in your life.” In my mind I’ve been trying to navigate around the labyrinth that currently surrounds me. I am in… Continue Reading “The Little Things In Life”


    “Life is like a wheel, sooner or later it comes around to where you started, reliving old challenges facing loss and once again rebuilding.” The heart of the question is simply this, “Are you strong enough to take the chance and spin… Continue Reading “A WARRIOR CAN STILL BE MADE OUT OF ME”

Mental health

  “Everything will be alright in the end. If it’s not alright it’s not the end.” The end of May approaches warmer weather greets us which means more outdoor activities. Let me set the day for you. After a cold long winter, there are… Continue Reading “Mental health”

A Family Who Embraces Each Other

Julie’s Perspective: I’m a 35-year-old runner, gardener, yogi, teacher, wife, and mom.  I love reading young adult novels, exploring farmer’s markets, adventuring with my family and experimenting with new recipes.  I don’t have cystic fibrosis.  In fact, for more than half my life, I… Continue Reading “A Family Who Embraces Each Other”

CFers Are An Incredible Bunch

Marissa’s Perspective: CFers are an incredible bunch, and Eric is no exception. Having a close view of his courage, strength, and determination has changed me for the better…and the not-so-easy times we’ve encountered have helped me grow as a person. I’ve become more thankful… Continue Reading “CFers Are An Incredible Bunch”

Life’s Fragility

 Eric’s Perspective: Most chronic, invisible diseases are like an iceberg. Even once you think you’ve got a complete picture of the shape of the monster, you haven’t seen the largest, scariest part. CF isn’t something that just flares up sometimes and lets you live… Continue Reading “Life’s Fragility”