Category: Another Perspective

CAN YOU SEE ME NOW

You didn’t cause it. You can’t cure it. You can’t avoid it. You can’t ignore it. You can’t control it. You try to manage it while concealing it from the “normal world”. Cystic Fibrosis (CF) is often called the invisible disease. Invisible illnesses are…

BREATHE

INHALE, EXHALE, now again INHALE, EXHALE, and REPEAT, it’s easier said than done for some. Breathing is an involuntary act which most people do not think about and take for granted. To someone with Cystic Fibrosis that breath you just took would be a gift! Many people have…

HERO-AS-SELF

Have you ever wanted to be a Hero, what is a Hero these days anyway? I am sure if you ask around you’ll get some interesting answers.  As the world has evolved the definition of a hero has changed.  The dictionary defines a hero…

15 Years!

My life has been based on numbers, predictions, percentages, baselines, decisions made by a team of doctors. I am not saying that I have not been a part of any of these decisions, in fact, I am the final call on all the end…

Contemplation

For the past few weeks, I’ve been looking for some guidance some extra light to inspire me, due to the fact I no longer know what I want or know where I want to be. I know there are still things in life I…

Life is A Card Game

Today is a special day, as well as yesterday even the day after tomorrow will be and so on for myself and others. March 21st marks 6 years since my second double lung transplant, followed by March 22nd making it 14 years from my…

Live Fearlessly

I am luckier than most people, even the ones who have won the lottery! How many people can say they have received two double lung transplants? My first transplant (March, 22nd 2002) and 8 years and a day earlier (March, 21st, 2010) I received…

In For An Oil Change

In For An Oil Change

  It has been almost 5 years since my second double lung transplant (March 2010) and 13 years since my first (March 2002). It is truly amazing how fast the time has flown by. I’m here because someone gave me the gift of life….

A Campaign With A Twist

  It’s an odd way of a campaign, but Scarpa makes a good point of how most of us value objects and money instead of giving a life!! ‘I buried my car, but everyone thought it was absurd when I said I was going to do…

Are You Aware?

Originally posted on CF Wife:
Do you remember the first time you learned about Cystic Fibrosis?  It has been my experience that unless you work in healthcare or have a personal connection to the disease (most likely through a friend, family member, or acquaintance),…